![]() 3 Despite these serious issues, only 31% of the respondents had sought medical help for sleep or sleepiness issues. 3 More than 30% reported needing to take a personal day because they were too tired to go to work, and approximately 20% reported making a mistake that resulted in personal injury or injury to someone else. 3 At work, survey respondents reported inability to concentrate (38%), as well as lack of productivity (36%) and motivation (45%) due to being too tired. One-third of respondents reported driving a vehicle while drowsy and 11% reported being in a car accident as a result of being tired. 3īeing too tired may have an impact on day-to-day life for any population, both personally and professionally, which survey results also revealed. ![]() After being informed of the definition of EDS, the inability to stay awake and alert during the day resulting in drowsiness and unplanned lapses in sleep, 1,6,7 65% of respondents who noted they are familiar with EDS reported this is something they commonly experience and 15% reported this is something they sometimes experience. Survey respondents were also asked about their level of sleepiness during the day. ![]() 4 Further, only half (51%) of people who reported they have heard of narcolepsy or are familiar with the symptoms considered EDS to be a potential indicator of narcolepsy and 73% had not heard of cataplexy 3 – a symptom only people with narcolepsy experience, except in rare cases. Of the people who reported they are familiar with the symptoms of narcolepsy, only 10% believe all people living with the condition have excessive daytime sleepiness ( EDS), 3 when in fact it is the essential symptom of narcolepsy – everyone with narcolepsy has EDS. "These survey results reiterate that public understanding of narcolepsy is limited and often inaccurate and there is a need for the entire narcolepsy community, including patient advocacy organizations, researchers, clinicians, drug developers and local communities to continue working to help combat misperceptions about narcolepsy that are common among the general population in the U.S." "On the heels of the inaugural World Narcolepsy Day, which took place on Sunday, September 22, 2019, we're pleased to see these continued efforts to raise critical awareness for narcolepsy," said Julie Flygare, J.D., president and CEO of Project Sleep. 3 These findings from the survey suggest that exaggerated portrayals of narcolepsy in movies and television may contribute to misperceptions of the condition and its characteristic symptoms. 3 Additionally, 43% of survey respondents who are aware of narcolepsy believe people with narcolepsy fall down often because they lose consciousness while walking or standing. Some of the respondents who reported they have heard of narcolepsy or are familiar with its symptoms said they heard about the condition from movies (24%) or television shows (35%). 3 According to the survey results, most respondents (83%) reported they are aware of narcolepsy in that they have heard of the condition or are familiar with its symptoms (51% and 32%, respectively) and some respondents (17%) reported they've never heard of narcolepsy. The online survey, conducted by Toluna Analytics and sponsored by Jazz Pharmaceuticals, suggests that while most respondents claim to be familiar with narcolepsy, their information may be factually inaccurate and may be influenced by the entertainment industry. 1 It is estimated that half of people living with narcolepsy may not know they have the chronic neurological condition. Narcolepsy is a serious condition that is often overlooked and misunderstood, and people with narcolepsy can live with symptoms for years before receiving a proper diagnosis. 30, 2019 /PRNewswire/ - Jazz Pharmaceuticals plc (Nasdaq: JAZZ) today announced the results of a consumer survey of more than 1,000 Americans measuring public perception and knowledge of sleep disorders like narcolepsy. Environmental, Social, Governance and DisclosuresĭUBLIN, Sept. ![]()
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